Drumroll please......

We have a diagnosis and a plan of action! I'm still debating how much to share .....so patience please!

Update...

Well...here goes. Leni, age 8 has had asthma related issues since her adoption and some developmental issues that haven't resolved themselves. Part of the 'plan' included watching her...getting therapy and hoping she outgrew most of what has continued to plague her. Now at 8 years old we are taking more aggressive action to those remaining issues. We started from scratch basically all over again getting tests, tests, and more tests. Here's what has surfaced so far and as much as I'm comfortable revealing. Her asthma remains and after today's pulmonology visit...is still pretty bad. The lung Dr. today said we need to be very aggressive in treating her from now on because her oxygenation is pretty sad.:( We got new scripts and are going to do just that. Leni also had an overnight sleep study done which revealed 'obstructive apnea with excessive sleep fragmentation'....in other words...she stops breathing in her sleep 3-4x an hour. Yuck. Put that on top of low oxygenation levels anyway and now we know why the poor thing has struggled. We will be seeing an ENT on Monday to schedule surgery to have her tonsils/adnoids removed ASAP. The next test will be a daytime sleep study that will look further into another possibility .... She currently has a cyst at the base of her brain stem that they are checking to see if it's putting pressure on the stem. That could also be aggravating her symptoms and causing her hypotonia (low muscle tone) as well. There is a possibility of another surgery here as well.

This is alot for an 8 year old:) but we're grateful to God for his mercy over this little girl. Not once have we ever doubted His great love for her and we know all is in His hands as we walk this thru. Thank you for your thoughts and prayers as we walk this thru in a way that gives the glory back to God. He is faithful!!

Hello! We've been gradually getting test results in which is resulting in more tests:) Yes, things are showing up which is actually good news. We have another major appointment on Wednesday after which I'll be able hopefully to explain a little further what we've been up to.

Thanks for your prayers AGAIN!! Back again soon!!

Our Little Patient

We are in the middle of lots of doctor visits, tests, and more tests. Our little patient is doing amazingly well considering all the poking and prodding going on! There are some asthma issues that Leni hasn't outgrown that they are doing more intensive testing on....in addition to looking for some underlying causes she continues to battle. Thank you for your thoughts and prayers as we are getting answers! One of those is new glasses for our sweetie:) Here she is after having to have a general anesthesia for one test....being wheeled out in her chariot to the car. If you don't know this angel...she's a silent sufferer and has taken all this in stride. She's amazing!

We're rockin and rolling with all our appointments around here! Miss Leni has been poked, prodded, and hooked up to all kinds of beeping machinery over the course of this last week. Some of it was fun.... Mostly not so fun but she's a trooper! More tests and doctor visits this coming week. Hopefully I can get some pics to show she approves of:) Thanks for your prayers!!

A Funny!

We certainly mean no disrespect to the office of the President but this is how I found Katie Mei at our local craft store the other night. The outfit was completely her doing....including the nose-picking. Yea for phone cameras! Isn't this hysterical??!!

Life.....

Well...we've settled into a dull-but-not-so-dull routine of school, school,activities, school, and did I mention school?? The ladies are doing FANTASTIC this year...so I'm going to ride the wave of this momentum as long as it lasts!! The older girls are homeschooled, while Katie attends K4 three days a week. What's funny about Katie is that last year she loved school but wouldn't talk unless spoken to. This year she's the bossy one...with hands on hips telling all the boys what and where to go! We are by FAR the smallest in the class but we make up for that in the boldness of our mouth (says the teacher!!). Gotta smile:) Survival of the fittest at it's best!

Everyone can pray for us too, if you feel led. We've started the ball rolling on some major diagnostic testing on one of our little ladies. We'll be seeing 5 specialists in the coming weeks....including having to undergo a general anesthetic for one procedure. Not fun, but necessary as the time has come to make some decisions and get the help she (we) needs. It's hard to explain needles and such to a little one...so your prayers are coveted. Thank you!!

I hope to be back on track posting here as well!! I'm finding the multi-tasking is not getting any easier as time marches on!! Now back to phonics fun....!